The world stops when you find a lump

Broken clock Staring down at the radiology request, a few handwritten words seemed to jump upwards off the page to the sky: Gritty. 8 mm. URGENT. Surely this wasn’t about me.

A month earlier I found a lump. My GP couldn’t feel it, but she sent me to get it checked out. I wasn’t that worried at the time; if my GP couldn’t feel it, it wasn’t there.

My appointment finally arrived by post (I hate how the NHS make appointments for you!) It wasn’t a particularly convenient time, 2 pm, right before pick up, so I called to reschedule. After about 10 minutes on hold, I decided it would be easier to get a friend to pick up the girls from school than to wrestle with the NHS. I kept the appointment.

I spent some time looking up breast cancer symptoms and was slightly reassured; the lump felt squishy to me, not hard and gritty. I thought it moved around a bit. Sometimes I could find it, sometimes I couldn’t. There were no skin changes. I convinced myself these were all good things.

So when I showed up to my appointment last week, and within minutes a senior Nurse Practitioner was sticking a long thin needle into a lump, my world stopped. She showed me what the needle had drawn out; watery fluid with a few drops of blood. It looks cyst-like, she said.

Then she asked me to come into her office; she wanted to know if I could come back in two days to get a mammogram and xray. The results of the needle aspiration would be back then. She talked to me as she was writing, and then handed me the radiology request, saying she had put me on the faster track and to remember to bring the slip of paper to xray when I came back then. She said not to worry. It was routine. I should have just put the paper in my bag. But I couldn’t resist. I had a job to trying to decipher the medical handwriting, but there it was making my heart drop: “Gritty on aspiration”, “lump 8 mm” and then URGENT in bold letters. I quickly put it back in my bag as if that would make it go away.

The next 48 hours didn’t really happen.  My husband was away on business. My nine-year-old proudly made toast for breakfast, cutting the bread into heart shapes, and slathered them with lemon curd and strawberry jam. I wasn’t hungry but I took a few bites. My girlfriends took me to a French restaurant for lunch and wondered why I was so quiet and left the goat cheese and bacon salad half eaten. I kept replaying the scene with the nurse in my head. It looks cyst-like. It looks cyst-like. I’d be OK, then suddenly I would start breathing really fast and heavy and feel sick.

Thank god for Charlene (you may have met her at CyberMummy, she was behind the reception desk). She took the girls to school when I went back to hospital and then came back to wait with me for the results. She talked to me about kitchens, joking about some of the parents at the school gate, and generally steering my mind away from the places it may rest, like if it is 8 mm, how long has it been there? Why did she write gritty? Who’s going to raise my children?

In my mind, my future was whirling around in the air, and could settle anywhere. Yes you do, no you don’t. It turned out to be no you don’t. The mammogram and xray came back normal. So did the needle results.

It does bug me that mammograms are not routine in the UK until your are 50 (!) and then you are only eligible for one every three years. In the US, if you have insurance, you are eligible for one every year after the age of 40. The NHS is great once something has been diagnosed, but surely early detection is key?

Please everyone — do a self exam regularly.

Photo: kittyxcat

58 COMMENTS

  1. A Modern Mother | 1st Feb 11

    Thanks for is Delia, I had not followed this, but now will with great interest

  2. A Modern Mother | 1st Feb 11

    Thanks so much for your thoughts

  3. Crystal Jigsaw | 26th Jan 11

    Oh God. My heart was well and truly in my mouth throughout this post. The relief I felt when I got to the end was overwhelming and has actually brought tears to my eyes. I cannot imagine how you felt. But I am so glad you’re clear.
    CJ xx

  4. CherishedByMe | 25th Jan 11

    What a worry and a stressful time to go through. Thank goodness everything is okay. Take care. X

  5. Sandy Calico | 25th Jan 11

    What a relief. x

  6. Calif Lorna | 25th Jan 11

    Thank goodness, what a scary time. Having just turned 40 I’ve just had my first mammogram. I didn’t realise it was 50 in the UK, that really seems to late.

  7. Nickie | 23rd Jan 11

    *gulp*
    I am only echoing what everyone else has said… it’s such a worrying time – limbo – but I’m very glad your results came back “normal”. Glad you’re ok.

  8. Emily O | 22nd Jan 11

    What a relief you’re okay. Terrible thoughts must rush through your mind at times like this, many of which must be around your children. Hope you’re recovering from the stress now.

  9. Charlene | 22nd Jan 11

    Well, that’s a phrase I don’t hear often enough….

  10. Delia Lloyd | 22nd Jan 11

    Hi Susanne – Glad it came back normal and that you’ve moved through this process in one piece. It’s wretched. When I first moved here from the States 4.5 years ago, I too thought that they should be screening earlier and more often. But as you probably know from the huge uproar that ensued last year when a panel recommended moving the US towards the British end of things vis screenings, the evidence is really unclear that there’s much benefit from earlier/more frequent screenings and there are actually some risks (increased exposure to radiation etc.) Anyway, I’m sure that doesn’t help when *you* are the statistic, but it is complicated…
    Delia Lloyd
    http://www.realdelia.com

  11. Mrs Green | 22nd Jan 11

    Wow, what a scary time and such a brilliant piece of writing too. I was crying when I was reading through; it was so moving. Can’t begin to imagine how you felt and just grateful that this is something you can clock up to experience. Thanks so much for sharing…

  12. Susanna | 22nd Jan 11

    Thanks Ellie

  13. Susanna | 22nd Jan 11

    Thanks Liz

  14. Susanna | 22nd Jan 11

    Thanks Iota, I almost picked up the phone to call you, then I realized I didn’t have your number!

  15. Susanna | 22nd Jan 11

    Thanks Suzanne

  16. Susanna | 22nd Jan 11

    Here’s to friends!

  17. Jo | 22nd Jan 11

    Gosh how terrifying the whole thing must’ve been, so glad it’s turned out ok. If only thoughts came with an off switch sometimes xxx

  18. Geekymummy | 21st Jan 11

    So glad all is well.

  19. Mwa (Lost in Translation) | 21st Jan 11

    What a thing. So glad it was okay. That must have been a horrible two days.

  20. MumsRock | 21st Jan 11

    Susanna I’m so sorry you had to go through this – thank God you were seen quickly and all is well. Mammograms should be offered to women earlier. My MIL has regular ones and it picked up her Breast cancer at a very very early stage and thankfully she was treated v.quickly and is now fine. Thank you for writing about this experience too. It’s a powerful reminder to us all to remember to self-check on a regular basis. xxx

  21. fenngirl | 21st Jan 11

    What a horrible experience. I held my breath reading the whole post. So glad that you are OK – self examination is so important. I found my own lump – and am ashamed to say I waited six weeks before going to the GP as I’d had a bump before and thought it was just bruising. Sadly for me, it was not a false alarm. But, out the other side, so glad I didn’t ignore it for too long.
    The sense of relief you must feel must be immense. Am so pleased that you posted this – I hope that it encourages women to self-examine and err on the side of caution. Don’t feel embarrassed or that you’re wasting health professionals’ time. It is too important to leave to chance.
    Sorry for rambling – I was just so touched by your post. x

  22. Insomniac Mummy | 21st Jan 11

    So glad you’re OK! I found a lump when I was pregnant with Elodie and worried myself sick. The doctor said she thought it’d simply be due to hormonal changes and it would more than likely disappear once Elodie was born, which thankfully it did.
    Regular self examination is so important.
    Sending you a great big ((((hug)))).
    xxx

  23. amy | 21st Jan 11

    That is so scary sweetie. I found a lump in my right breast a few years ago, the GP wasn’t concerned so i went to a private hospital for a needle aspiration and an ultrasound. Thankfully everything came back clear but it scared the life out of me. I was only 22 at the time. My smear is due and i keep putting it off but i am going to go this week. I am so glad your results were negative lots of love to you xxxx

  24. Liz (LivingwithKids) | 21st Jan 11

    Susanna I’m so sorry you had to go through this. Thank goodness you were seen and examined quickly. I’ve had a few cancer scares and I know how your world stops as you start to try to imagine leaving your family behind. I’m so glad you’re OK and as you say this post highlights why it’s so important to be aware of all changes. I interviewed a celebrity recovering from breast cancer just before Christmas who made me feel very glad for the health I have. Big hugs to you and your family xxx

  25. Lorraine The Party Times | 21st Jan 11

    OMG – poor you, so glad all okay but your mind must have taken you to hell and back. Have had similar experience and can relate to you sharing your thoughts – so glad nightmare is over xxx

  26. Rosie Scribble | 21st Jan 11

    Good God. How terrifying. What a relief it all turned out to be okay. There has been lots of publicity about regularly checking yourself. Have I done this recently? No. Will I now? Absolutely.

  27. MommyTime | 21st Jan 11

    I’m so sorry that you had to go through this. How very scary. There has been lots of controversy here in the US about annual mammograms, one of the problems apparently being that there are often false positives, which lead to extra procedures only to determine there is nothing wrong. It is not clear to me, however, that NOT looking in the first place is really the best solution. You are right, self exams really have to be a first line of defense.

  28. kat | 21st Jan 11

    So glad the results came back normal, must have been horrible worrying yourself so much over it.
    I think the NHS thing is about risk and cost management (don’t quote me, I’m no expert!) something like the point where the cost of the treatment and threat to life out weighs to cost of prevention. That point for breast cancer must be 50, for cervical it’s 25. One example of this is we don’t vaccinate for chicken pox whereas private systems do. Not an easy line to walk.

  29. Heather Davis | 21st Jan 11

    Great post Susanna. It’s something we all dread finding that lump. It’s so important to remind everyone (and to be reminded) that self-examination is key. I am now going off to the bathroom to have a feel around! Glad everything was okay in the end. Hx

  30. @Simply_Hayley | 21st Jan 11

    I’ve known a few friends who have had lumps, one was only in her late twenties so I make a point now of being extra vigilant, it can be so scary and I cant imagine what its like having to wait but at least it came back normal!

  31. Kate at BOTTLE PR on behalf of BreastHealth UK | 21st Jan 11

    Hi Susanna, sorry to hear about your scare and you’re right to stress how important it is for women to check their breasts regularly for any abnormalities as early detection is key.
    Recently, BreastHealth UK, who offer private breast screening services at clinics nationwide, launched a free self examination reminder service via the website. This service reminds women during the middle of their menstrual cycle (the best time for women to check their breasts for any abnormalities) to examine their breasts.
    It’s easy to sign up – women should visit https://www.breasthealthuk.com/ and enter their name, the date of the first day of their last period, mobile number and/or email address. A reminder will be sent at the optimal time of the month, including a link to a short video which shows an experienced breast nurse demonstrating how to do a self examination – an essential skill for all women to learn.

  32. Iota | 21st Jan 11

    I’m so glad you got the all clear. My blood was running a little cold as I read the post.
    And yes, I just echo your DO SELF EXAMS advice.

  33. babieswhobrunch | 21st Jan 11

    scary reading. v tense. v glad about the ending.

  34. Suzanne | 21st Jan 11

    What a chilling thing to have to go through, and am so glad that the results came back normal.
    A wake-up call for us all.

  35. Susanna | 21st Jan 11

    Thanks Karen

  36. Susanna | 21st Jan 11

    Thanks Josie

  37. Susanna | 21st Jan 11

    Thanks Lisa.

  38. Susanna | 21st Jan 11

    thanks Deborah

  39. Susanna | 21st Jan 11

    thank you for your thoughts

  40. Susanna | 21st Jan 11

    Gotta love the radiologists. Good luck and keep us posted.

  41. Susanna | 21st Jan 11

    Very interesting indeed. I must google that now.

  42. Susanna | 21st Jan 11

    Thank you Antonella, I don’t understand it either. I am however convinced you need a new GP!

  43. Antonella | 21st Jan 11

    OMG, Susanna, I felt like a cold shower all over me when I was reading this post and jumped straight to the end. I’m sooo glad that it was negative. And I really mean it. I had a little scare last October but my gp don’t think I was eligible for a scan, so I dropped everything and went to Italy to have a mammogram and breast ultrasound done (I have still the “luxury” to be able to do this, fortunately!). Both were negative, but I don’t understand why prevention is not important here. It cost less to prevent than to try to cure cancer later and often is too late anyway. All the best from the deep of my heart. Ciao. A.

  44. nappyvalleygirl | 21st Jan 11

    Very glad to hear you are OK. How scary – it is all our worst fears x
    You might be interested to know that in the US, they are now reconsidering the yearly mammogram, as apparently the impact on early detection is very low and the risks of radiation from the mammogram might even be greater. It’s been a big debate in the media here.

  45. Expat Mum | 21st Jan 11

    Horrible, horrible isn’t it? My heart really goes out to everyone who has to take the whole process further and deal with “something”. I had to have a uterine ultra-sound this week as my OB/GYN said my uterus felt “mushy” (technical term). Fortunately the radiographer said she could only see one tiny little fibroid, but I’m still waiting for the doctor’s follow up. Sigh!
    PS. Glad you are OK.

  46. Zelish | 21st Jan 11

    Hi Susanna,
    I have read your post holding my breath. Having recently lost a loved one to cancer, your post touched me deeply. If I’m honest, while reading I had to hold my tears back. I would not wish this type of illness on anyone. And when the person questioning their health has young children it is even more upsetting for me. Glad to find out that all is well with you and I wish you a healthy future to come.

  47. Metropolitan Mum | 21st Jan 11

    Holy shit, you really scared me here. So so so so happy that you are all right.
    Hugs and cake,
    Deborah

  48. Jo Porter | 21st Jan 11

    What a relief! Sorry you had to go through that but thanks for the post – timely reminder.

  49. Home Office Mum | 21st Jan 11

    so glad that ended the way it did. It’s so horrid the places your mind goes to when something like this happens

  50. Lisa | 21st Jan 11

    Thank god you are okay! Had no Idea you had to wait until you are 50 to get a mammogram there, thought it was every other year.
    Your story shows how important self examinations are.
    Giant hugs. So sorry you had to be so worried for a few days but glad they got to see you quickly.

  51. Karen@therubbishdiet | 21st Jan 11

    Oh Susanna, that’s such a horrible experience for you to go through and thank goodness you’re okay. Was welling up there thinking about you. It’s a clear reminder that regular checks are so important. so glad that you’re in the clear. x

  52. Josie | 21st Jan 11

    So sorry you went through this. What a relief everything is ok. Deep breath now, hope you’re able to move past it quickly xx

  53. Rachael | 21st Jan 11

    Oh thank God. I am so glad you’re okay. That must have been so hard for you. And yes, I remember Charlene. She is lovely. Thank goodness for friends.

  54. Susanna | 21st Jan 11

    Thanks Jay. Follow-up in six weeks (standard with cysts and most likely another needle). But you are right, you should not wait if you feel any changes. The consultant that did my xray made that very clear. If you feel any changes she said it just wasn’t worth it to wait. The NHS system is very good once you get into it. DO SELF EXAMINATIONS REGULARLY.

  55. Susanna | 21st Jan 11

    Thanks you and glad I’m not the only one who has iPhone spelling!!

  56. Penny | 21st Jan 11

    ‘Have’ not ‘jar’ a relaxing weekend 😉 on my phone if you hadn’t guessed.

  57. Penny | 21st Jan 11

    So relieved for you and can’t imagine the turmoil you have been through. Hope you jar a relaxing weekend. Thank goodness for great mates x

  58. jay | 21st Jan 11

    Geeze. That is so so very scary. I’m glad to hear that everything is ok, and that they (and you) were able to act quickly on it. Do you have any follow-up appointments or are you just to monitor any changes?
    It’s times like this when I feel that checking ourselves for lumps should not be taken lightly, and should most definitely be encouraged to be a regular thing.
    So glad it was nothing serious. x

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